18 October 2023

The Data Manager shares the most satisfying thing about setting up clinical trials and what keeps her to-do list varied.

What is your role within King’s Health Partners?

I work with King’s Health Partners Haematology on a varied set of projects relating to clinical research governance and delivery. 

With Dr Reuben Benjamin, I have established the South East London Plasma Cell Disorders Registry (SEL PCD Registry), collecting real world data on patients with myeloma and related disorders under the care of King’s College Hospital NHS FT and Lewisham and Greenwich NHS Trust – both soon to be joined by Guy’s and St Thomas’ NHS FT.

I have also contributed to the set-up and delivery of the PiMMs study - investigating patient outcomes when treated with panobinostat for relapsed myeloma. I also helped with set-up and ongoing governance of the Ascelus study, exploring new digital follow-up pathways for patients with long-term stable blood conditions, utilising an app for symptom reporting. 

What do you enjoy most about your role?

I enjoy seeing projects come to fruition – the three large projects I’ve worked on in this role have all been things that I’ve had a hand in from their inception. It’s very satisfying to see clinical trials go from an initial plan, to recruiting patients and collecting data, to reviewing outcomes and compiling final analysis.

What inspired you to get into this work?

I started working with King’s College Hospital NHS FT as a data manager for clinical trials. Since then, I’ve mostly followed my nose through trial delivery, via trial governance and a brief stint in Research & Innovation, to a more mixed role where I cover a bit of both, with the addition of trial set-up work as well. My role is an unusual one in that sense, but there’s certainly advantages to having a reasonably holistic involvement in research – it means my to-do list is nicely varied.

What are the benefits of working in partnership?

Clinical trials I’ve worked on are always in some ways collaborations, so working in partnership feels like a natural extension of that – it’s just sensible to try and work as closely as possible, to pool resources and develop projects together.

King’s Health Partners Haematology brings together our strengths in clinical service, research, and education to deliver exceptional outcomes for haematology patients.